My Love Bugs

My Love Bugs
Mary Rose, Cameron, and John Charles

Wednesday, June 23, 2010

PRAYERS PLEASE

It is late and I am a tired and worried mom.  This is not about a memory or a moment.  It is about my Mary and the "spots" she has been getting since she was very young.  She has been breaking out in LARGE/mulitshaped hives since she was ~1 1/2 and along with it the hives usually swell and are enlarged at the joints.  Took LOTS of trips to dr, dermatologist, and allergist and a couple years ago finally diagnosed her with autoimmune urticaria.  In simple terms, she has antibodies in her blood that are allergic to her skin.  Various things can cause outbreaks, usually illness is a big one.  I have always been worried and concerned from day one and esp. b/c of the severe swelling at the joints.  It can last days and meds don't seem to help.  Well my Mary had an outbreak couple weeks ago and they did bloodwork again.  Her allergist called our house tonight to tell us that her bloodwork was positive for Rheumatoid Factor...I almost dropped the phone and started crying silent tears.  Ok so explain!!!   He says yes this can be a factor present in rheumatoid arthristis or lupus but does not mean she has either.  OK so now what as I am scared!!!  He says watch her, document any joint pain/complaints or any limping and we will see her in 6 months and repeat bloodwork unless she has outbreak before then, then bring her in.  REALLY I have to sit with this info for 6 months and just wait and see if my daughter gets symptoms?????   I am calling my pediatrician in the am and seeing if she can tell me more and maybe refer me to someone else for another opinion or maybe see a Rheumatologist?   I am scared and can't go to sleep...maybe I am afraid I will wake up and she will tell me her knees hurt?!  She does now and then complain "oh my legs hurt I can not walk up the stairs"...and I think she is just being whiny and not wanting to listen?  What if she has been in pain all along?  I am a mom beating myself up right now and so scared and sad and PRAYING so hard that my baby girl is just fine...PLEASE God, please!

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